How Much Remains
I have a list of 6 blog posts I want/need to write, but the one that actually has a self-imposed deadline is my birthday post; I’m turning 30 next week, on November 2! Last year, when I had my colon taken out in December, I did the math for the other two surgeries that would be required. I knew there was a relatively good chance of being in the hospital when my birthday rolled around, especially as I nailed down short-term jobs and I realized that with the book coming out in my favorite month (October) and my business getting really busy towards the holidays (mid-November-January), I was even more sure that a birthday hospitalization was highly likely. Except for the part where I’ll be in pain, dazed, and unable to eat anything for many days (no cake! no ice cream! no champagne!), I’ll still get to be surrounded by friends and family, surrounded by balloons, wearing a party hat, looking out the window, thinking about the years that came before, and hopefully the years that are ahead of me.
And when I think about it, this could be the best cause for celebration ever, a chance to regain health and the ability to live the life (or lives, as I attempt to be multiple people) I want. I will get rid of this ostomy bag after 11 months, 11 months of emptying a bag of poop that hangs at my side, too many times a day for me to want to count. I will not be looking at my small intestine poking out of my skin and into this bag. I will go the bathroom the “normal” way! It’s a pretty exciting time.
To make up for not spending my favorite holiday (Halloween) or my birthday doing what I’d prefer to do (ya know, not getting my guts rearranged), I packed it in during October, my favorite month. At some point, I will write all about that here. For now, I want to share with you an essay I wrote for a book that my friend Nancy put together, entitled, How Much Remains. It’s a compilation of essays about turning 30, all by women who share 1981 as their birth year. (You can buy it if you click on that link!) It is very related to what I mentioned above, and sums up way more articulately than I’m doing right now, how I feel about this milestone birthday.
“When is this tree’s birthday?” he asked, gently patting its rough base.
An image of trees celebrating with helium balloons and sheet cakes and silly games flashes across my mind, as I add this question to the always-growing list of reasons I am profoundly captivated by children.
I know what he is asking, that he is being perfectly literal, but I answer with a perfunctory adult response anyway: “Um…do you mean, how old is this tree?”
“No, I mean, when is his birthday?” he reiterates, a little agitated, as if I am misunderstanding entirely.
I answer again, with a teacher response: “You know what, I’m not sure. We wouldn’t do this, but if we cut it down and looked at the tree’s trunk, there would be all these rings. And if we counted them, we’d know how many years old it was. So if there were 4 rings, this tree is 4 years old, just like you.”
The teacher never wants to utter the words, “I don’t know” to a child who genuinely wants to know, and in this case, I don’t want to admit that, in all likelihood, no one knows when this tree’s birthday is.
“I think he’s older than me. He’s really big,” tipping his head back, as if a little more scrutinizing will successfully lead him to an answer—a day, a month, a year.
“He’s probably older than me even. How old do you think I am?”
He ponders for a good thirty seconds, looking around at the other kids and adults on the playground, and shivering a little because it is early spring in New York City: “A hundred?”
“Nope! A lot younger than that. I’m 22.”
As if continuing on from his original question, he says, “Because if we knew his birthday, we could have a party for him.”
“I know, I was thinking the same thing. Okay, give me your hand, we gotta go.”
********
“Happy birthday to you, happy birthday to you, happy birthday dear….” My body quivers and stiffens as I hear this being sung to a patient down the hall the moment I am staring out the hospital window at a row of evergreen trees. When is this tree’s birthday? Where is that little boy now, seven year later? The heartbreaking reality of working at a daycare center is the never-ending string of goodbyes, to children you spend months teaching how to tie shoelaces and wash hands. Because if we knew his birthday…. The song ends.
I stop looking at the trees and instead watch the slow drip of the IV bag, that mesmerizing regular movement of liquid emptying into my bloodstream by way of my hand. What is it I always think but rarely say to describe these grueling hospitalizations? For all that is being pumped into me gradually, and at other times, rapidly, my spirit’s lifeblood is gradually, and at other times, rapidly, draining right out of me. Physically, I make it out alive, but mentally is another story.
After six years of fighting a disease with no cure, it all seems to culminate in this poignant moment of remembering a tree and a child, a moment that feels light-years away from where I am now, physically, mentally: I am going on day five of nothing but clear liquids and day two of nothing but a daily 8-oz glass of water, which I extract with a tiny ridged sponge on the end of a plastic stick, as skinny as a twig. I am waiting to have my large intestine surgically removed so that I don’t die from severe ulcerative colitis or its brutal drug therapies. Or by own hand, for that matter.
Having narrowly missed spending a birthday in the hospital, there existing too many possibilities of doing such, I work out the math for the trio of surgeries required—there is a good chance I will be sung to right here, on my 30th [Day of the Dead] birthday. If I dread this milestone of a birthday, it will be for reasons that involve stretching my pain tolerance to a horrific, nearly unbearable degree. If I look forward to this milestone of a birthday, it will be because I could never face this annual event thinking, yet another year gone, but rather, yet another year, very fortunately, lived.
October 27th, 2011 at 8:37 pm
I wish you all the best as you go through your upcoming surgery, Alicia. And happy birthday, even if it doesn’t feel like that on the very day.
Wanted to mention also that I talked about both of you books today on my vidoecast, 90% Knitting. I’m linking to your blog and your Etsy shop as well. I love your things!
And in general…you spirit and your creativity are very encouraging to a mom (me) who has a daughter sho struggles with Crohn’s. No idea where that might take her in the future, but your words are encouraging to me.
October 31st, 2011 at 5:23 pm
It was an honor to have you contribute! Your essay is a gem in our collection.
November 3rd, 2011 at 7:38 am
A very happy birthday to you Alicia and I hope the op has gone well and you are recovering. Bye bye bowel, bye bye bag! At last! I have been thinking of you this week and sending lots of positive vibes your way.
Ali
x
March 21st, 2012 at 3:44 pm
I stumbled across your etsy site after reading my newly purchased craft book called, “MochiMochi.” I wanted to see if anyone on Etsy was selling “Mochi” plushies and such as are featured in the book. Your Etsy shop is pretty inspiring
I really enjoyed the creativity and ideas you had in your cute items and when I found out you had a blog, I had to look you up!
Did not even know that the MicroCrafts book I purchased the other day was edited and put together by you!! And the book is quite inspiring and amazing because I love all things Micro and Tiny!!
! I read your blog about your late friend, Diane. It brought tears to my eyes because the story you told hit very close to home. I lost my sister (my best friend) back in July 2011, not 8 months ago. Unknown disease that ravaged her body so fast, so damaging that she was gone not 3 days after being admitted into the hospital for what they thought was Pneumonia. It was the most horrible thing I have ever went through. My heart goes out to you with your own situation and your loss of your friend. Losing someone we thought would never die (so soon) is the most waking experience. Now I think about life, how short it really is, and I try to make the best of my relationships and I tend to find myself pondering at things I wouldn’t normally ponder at. I, at first, hated God. Hated Him for taking my sister. Taking my best friend! I told Him how much I thought of the life He has given us all. How depressing life is! With it’s many ups and downs. Life and Death. Give and Take Away. But He told me something after my many accusations. He said that she was His first. He reached out to me and told me that He loves me and that He is hurting because I am hurting. And that He will help me get through it all, that life was not supposed to end so shortly when He first created us. But you know how the story goes with how sin has brought death into the world and all that. And so, even though I was angry, I realized that God is God. And He is faithful, true, never-changing. He will tell me the truth, now matter how much it hurts. And that life here on earth is not forever, but life with Him and my sister, Tia and everyone of my loved ones that have passed on before me that were followers of the Almighty will be spent forever and eternity in Heaven. And knowing that gets me through, because I know one day when I take my final breath on this earth that I will close my eyes, and when I open them again, I will be reunited with my dear sister. It always seems like He takes the best first. And she really was. My heart goes out to you. I pray that you find comfort and healing. ~Leisha~
July 6th, 2012 at 1:42 am
Alicia you have written in your blog the touching stories, thanks for sharing